High drug costs: the tale of 4 women
In 2016, Berna Heyman testified before a U.S. Senate committee about her personal experience with sudden and dramatic increases in drug prices. She was forced to switch drugs to treat her [...]
98-year-old drug inventor chastises pharma for “behaving badly”
By: Rhonda Rowland, WDA PresidentBy: Rhonda Rowland, WDA President I’ve spent my career reporting medical news. It’s an important topic to me because I live with my own health [...]
1983: The 35th Anniversary
This is the 35th anniversary of 1983 – an important year in my life. And, for anyone living with a rare disease. It was a year full of historic landmarks, too: the [...]
How We Get Scientific Answers
I've read and reported on scientific studies for my entire career, and now I'm finally getting my chance to be a part of one. It's a patient registry study for Wilson disease! [...]