Travis’s Story of Wilson Disease
By: Rhonda Rowland, WDA President Rare and Rural We all love a small town. Images come to mind of holiday parades and a tight community where everyone knows who you are. [...]
The 100th Registry Participant
By: Rhonda Rowland, WDA President I’m study participant number 30 in the Wilson Disease (WD) Patient Registry. That’s not exciting. However, if you’re participant number 100, you represent a milestone. And, that is [...]
They Said “Yes” to Gene Therapy
By: Rhonda Rowland, WDA President We continue the story of two trailblazers who are among the first Wilson disease (WD) patients to volunteer for one of the two gene therapy clinical [...]
Meet the Inaugural Gene Therapy Candidates
By: Rhonda Rowland, WDA President The two gene therapy clinical trials for Wilson disease (WD) launched by Ultragenyx and Vivet Therapeutics are underway! Here, we introduce the WD community to two [...]
How We Get Scientific Answers
I've read and reported on scientific studies for my entire career, and now I'm finally getting my chance to be a part of one. It's a patient registry study for Wilson disease! [...]