How a Chance Conversation Led Me to a New Treatment

By |2018-08-27T21:32:43+00:00March 2nd, 2018|Health, Rare Disease, Wilson Disease|

You never know when a chance conversation will change the course of your life. It was the year 2000, and I was attending the International Health and Medical Media Awards, better known as the FREDDIE'S, in New York City at the Pierre Hotel.  Attending the [...]

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It’s Penicillamine, Not Penicillin!

By |2018-10-01T14:56:50+00:00March 1st, 2018|Health, Rare Disease, Wilson Disease|

You've heard of penicillin, right?  It was one of the first antibiotics – and is still one of the most widely used.  It has saved millions of lives since it was discovered, accidentally, in 1928. But how about penicillamine?  When I tell people that my [...]

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