Rare Disease is Not Rare

By |2018-08-27T21:31:08+00:00February 28th, 2018|Health, Rare Disease, Wilson Disease|

When was the last time you felt competitive? My last time surprised me, because it was at my book club. It wasn’t about that month's book selection – rather, it was when I told my book-loving girlfriends about the book I’m writing, on the rare [...]

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No More Martinis For Me

By |2018-08-27T21:28:41+00:00February 27th, 2018|Health, Rare Disease, Wilson Disease|

Imagine practicing medicine without the internet. In 1983, doctors relied on the medical books in their office or a nearby medical library for reference. Medical journals describing new scientific studies arrived through the mail. Then as now, they relied on knowledge remembered from medical school [...]

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How Martinis Led to my Rare Disease Diagnosis

By |2018-03-09T21:50:57+00:00February 26th, 2018|Health, Rare Disease, Wilson Disease|

The night I drank my first martini would also be my last.     My husband says the martinis saved my life.  I’m not sure about that, but by the end of that weekend my life was forever changed. I went from believing I was a healthy [...]

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